ve felt so frustrated because Anna's progress has sort of halted a bit. We were sitting on 10 days without any changes and we were beginning to think that she would never get off the ventilator. The hospital's NICU unit is moving on September 12th so we had a bit of a timeline to meet since there was no sense in moving her twice. We were SO hoping that she would make it out of there before September 12th. Well to our surprise, one day before my 30th birthday (eek), last Thursday, they took her off si-pap altogether and she was able to breathe on her own! Since then she has done wonderfully and we were told Friday that on Saturday morning she would be transferred to our Level II hospital 5 minutes from our home.
Unfortunately things didn't pan out as planned. The Level II unit wanted her to get another eye exam before she came since their eye doctor was on holidays so she would be due for an exam in 2 weeks and he would not be around to do it. So now we have been bumped back to probably a Wednesday transfer, pending that there is a bed available for her in the Level II.I'm not going to lie, the drive is killing us, the parking is killing us, the eating out is killing us. I'm not sure how we're making ends meet but we somehow are. I feel so burned out and I can't imagine how my husband feels with the pressure of work and travelling every day and money.
I guess Anna is what keeps us going strong :) She is doing so well now off the ventilator, she is up to 24mls of milk every 2 hours and the span has been shortened back down to 1 hour, and weighs 3lbs 14oz as of today, so almost 4 pounds! It doesn't seem like a lot to most people but it's so different for us. She's actually a size now where I feel comfortable handling her without feeling like she's too fragile. It's great!!
Anyways, I'll update when I hear anything about her transfer. Until then we just have to sit patiently and wait....
You three are both so strong, this will be a distant memory soon enough. I'm amazed reading your journey to parenthood and it's touching to see how she gets better each day. Praying that you get the transfer to the hospital near you this week. I'm sure it will make all the difference in the world to you and your DH. Keep strong, we are routing for Anna full and quick recovery.
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